Talk to Pediatrician on Gaucher Disease 3 (2 Year Boy)

Jb baby 1 year ka Tha tb hi doctor ko check kerwaya k is ki growth normal baby jesi nahi slow Hai. Her qisam k blood test huwe Lekin sb negative thy. Sirf CBC me pta chal raha Tha k is ka blood nahi bn raha Lekin is ko thelesemia bhi nahi Hai report k mutabiq. Phir is ka Germany se test kerwaya to pta chala k is ko GAUCHER DISEASE 3 Hai. Ab is ko almost 3 months ho Gaye hain Cerezyme injection LG raha Hai. Lekin improvement koi khaas nahi Hai. Milk or water k ilawa kuch bhi khata Hai to vomiting start ker deta hai. 1 choti se bite bhi nahi kha sakta. Last 1 month se resha boht nikal raha Hai. Sari sari raat or din Har 10 min me almost 1 dfa to zaror resha nikala Hai. Kindly is k bary me btaye k GAUCHER Disease ka solution kya ho sakta Hai? Reshe ko khatam kerne k lie koi Esa treatment Kia ja sakta Hai jo is ki disease ko or zyada kharab Mt kere.

Kindly reply keren.